Activist With ALS Tells Congress: ‘GoFundMe Is A Terrible Substitute’ For Gov’t Action

Start your day with TPM.
Sign up for the Morning Memo newsletter

Ady Barkan, an activist with advanced amyotrophic lateral sclerosis — known as ALS, or Lou Gherig’s disease — urged members of a congressional committee on Tuesday to support Medicare for All.

“Some people argue that although Medicare for All is a great idea, we need to move slowly to get there,” Barkan, who works with the progressive Center for Popular Democracy, said in his opening statement to members of the House Rules Committee on Tuesday. A computerized voice read his words.

“But I needed Medicare for All yesterday. Millions of people need it today. The time to pass this law is now.”

Explaining that even with “comparatively good private health insurance,” his family had relied on family, friends and supporters to pay $9,000 monthly for home care, Barkan said: “GoFundMe is a terrible substitute for smart congressional action.”

“The fundamental truth,” he added later, “is that too many corporations make too much money off of our illnesses, and they are spending gazillions of dollars lobbying and campaigning and fighting to stop us from building something better.”

Barkan has been a national force in American politics during the Trump administration, from his encounter on a plane with then-Sen. Jeff Flake (R-AZ) to testifying before Congress to starring in campaign ads and fundraising for congressional Democrats to getting arrested multiple times in the U.S. Capitol (handcuffs were unnecessary for his otherwise nearly immobile wrists).

Thursday’s hearing was on Rep. Pramila Jayapal’s (D-WA) Medicare for All legislation; Committee Chairman Jim McGovern (D-MA) said it was the first hearing Congress had ever held on Medicare for All.

Watch Barkan’s full opening statement below, or read it here.

Latest News

Notable Replies

  1. Avatar for surge surge says:

    I’m amazed and humbled by the courage and determination displayed by heroic citizens like Ady. I’m also amazed at how much suffering needs to be endured before even a few people rise up against the greed and cruelty that’s holding back this entire country.

  2. Avatar for sandi sandi says:

    Truth!

  3. I saw elsewhere someone state that our health “care” system is working exactly as designed. It was never meant to take care of patients. It has always been about profit.

  4. Ady Barkan is a better American patriot than any 100 Republicans you’d care to name.

    His courage and fortitude are an inspiration.

  5. Shame on America. This is 2019 for crying out loud.

Continue the discussion at forums.talkingpointsmemo.com

32 more replies

Participants

Avatar for paulw Avatar for sandi Avatar for josephebacon Avatar for jsfox Avatar for littlegirlblue Avatar for meri Avatar for sniffit Avatar for bonvivant Avatar for lastroth Avatar for jhand Avatar for moreyampersand Avatar for thunderclapnewman Avatar for georgeh Avatar for Ken_a_roni Avatar for ljb860 Avatar for tiowally Avatar for mkposs Avatar for surge Avatar for eisenst Avatar for skeptical Avatar for offset Avatar for rascal_crone Avatar for rucleare Avatar for Akimbo

Continue Discussion
Masthead Masthead
Founder & Editor-in-Chief:
Executive Editor:
Managing Editor:
Deputy Editor:
Editor at Large:
General Counsel:
Publisher:
Head of Product:
Director of Technology:
Associate Publisher:
Front End Developer:
Senior Designer: